Tarmon Gai'don
It is a peculiar feeling to witness the construction of a powerful, international establishment intended specifically to eradicate people like me from the planet. It is a feeling that I find very difficult to convey to most people, since they cannot for example visit the websites of organisations that explain what a terrible burden people like them are to families and society in general, but that there is hope that doctors will soon be able to prevent more people like them from being born.
I can do this, although I seldom do so nowadays. I may be overly sensitive, but I can only take so much of reading about scientists trying to exterminate my kind in a given month, not to mention parents describing people like me as having devastated their families and as being their greatest sorrow. Those are of course mild examples, and there are many far more 'interesting' ones.
I hear of high profile television shows that collect money for the cause of making sure that no children like me will ever be born. I hear of parents who, in the meantime, try to change us into people like them by for example administering various dangerous chemicals, subject us to torture or ceaseless obediance training or just lock us up so they won't have to see our 'bizarre' behaviours.
I recall something about there being laws against child abuse, but then I remember that they only apply to children who are like them. I remember that children like me are exempt from such laws, as almost any treatment can be justified simply by a medical professional explaining that the child is like me, and thus does not need to be shown the same consideration granted other children. Since people like me are different, they explain, we don't experience abuse the same way. I remember the long list of people like me who have been murdered with mild or no repercussions.
I watch those of us who have decided to do something about it. I read what others like me write online, learn of the few victories out in the real world, see the few vocal parents of people like me support our cause against the sensless hysteria and rampant xenophobia. I see these things we do, and I wonder if it's enough, or if it will ever be enough to defeat the extremely well-funded organisations looking for a way to identify us so that parents can be coerced into having us aborted.
I read the writings of people with Down syndrome, for this has already happened to them. There are prenatal tests to identify DS children and mothers are encouraged if not pressured both to take the test and to abort the child if the test is positive. DS people are being actively eradicated as I write this, in this so called 'modern society', and some of them have had the odd experience to force their way into conferences and tell the medical professionals to "stop killing people like us".
I wonder when people like me will have to do the same. It's not such a far fetched possibility. Many conferences about people like me are already making sure that we do not attend. These things are really happening, right now, and one day I may be the one forcing my way into such a conference and telling the medical professionals assembled before me to "stop killing people like us".
I just don't know if it will matter then, as I fear that it may be too late if it ever comes to that, but if I'm still able, I will make myself heard.
"Till shade is gone, till water is gone, into the Shadow with teeth bared, screaming defiance with the last breath, to spit in Sightblinder's eye on the Last Day."
Update: Linguistic tinkerings.

10 comments:
I'll go with you if you want or need company.
Because it's not right to choose who gets born and who doesn't based on things like gender, physical appearance, or the presence of a disability.
Because ADHD is on the same list as autism, and I don't think my parents would have rather not had me as a daughter, just because I have ADHD.
Because people are people are people, and eugenics is murder.
Wow. As the parent of a 6-year-old with autism, let me say that I agree with everything you said.
We treat my son with chemicals (an SSRI and some blood pressure medicine), but not to make him like us - nobody would want any more people like me around. The Celexa and the Tenex make him more like himself - able to deal with his impulsiveness and do the kind of things he wants to do.
We also sent him to therapy, but not the crazy cruel kind. He was taught by women than he loves to this day - probably more than he loves his mother or I - with kindness and respect. No discrete trials, no Lovaas anything - just repitition and structure that allowed him to learn faster than any of us thougth possible.
We don't, however, give money to those wackos at CAN or their ilk because what we want for Jared is for him to grow up to be happy. Period. We want him to be himself, whatever that is, and we want him to make his own choices about his life as he matures and becomes able to express those choices to us, the same as we do with our non-autistic daughter.
So please don't think the whole world is against you. My son is the best thing that ever happened to me, and I couldn't love him any more than I do, autism or no. And there are lots of us out there that are in complete agreement with you.
I'm with you!!
I want to listen and act based on what the autistic community wants and needs.
You are helping me be a better parent.
Estee
Thanks to Lovaas ABA therapy and the loveliest, most loving of therapists (as the one I wrote about today, my son has become the happy boy who ran smiling onto the schoolbus. What gifts of self-understanding and simply of understnding he has given me I cannot calculate. Who could ask for a lovelier boy, a better life?
Charlie has many a struggle in this life, just as my Asperger's sister does and did, and just as my very ADHD husband did and does too.
A world without these people is not only inconceivable; it is someone else's dark mad fiction.
Tack!
It may be dark mad fiction, but it is very close to happening in real life.
The only way we can stop it is to keep on writing, no matter how difficult.
We will not go quietly into the night!
In one of her articles that is not online, Astra Milberg has said that she feels like one of an endangered species, that there is a sign at the entrance to the gene pool saying "No Dummies Allowed". (See In: Difference: A little book about diversity)
There are people who are with you. I’ve only recently been thinking about how this powerful anti-autistic lobby acts and how it is like eugenics. It is a terrible thing. Thanks to some great writers, I am learning and hope to be better able to work on what my son needs most; for the world to change to fit him rather than for him to change to fit society’s expectations.
Hi I'm new here - been lurking on these things for quite a while. I'm afraid I'm going to be controversial here! I have to admit that I have little knowledge of the extent to which the medical establishment is pressuring parents to abort fetuses with disabilities. However one issue that has not not mentioned is that there is virtually no support for parents whose children are disabled. This is particularly relevant in cases where the parents have low incomes - its a fact that a child is expensive and a child with a disability more so. In the individualistic and capitalistic society that we live in parents are left to fend for themselves, and its no wonder that there are so many abortions, and not just for reasons of disability.
IMHO most abortion "controversy" takes place because some people don't really understand the "past perfect" form when it comes to conscious human beings.
For example, if I say "screening Down syndrome is OK if it's the parents' choice", then a person with Down syndrome can immediately attack with "so you think I *should* *have* *been* aborted?".
The only consistent answer is "yes, if it *would* *have* *been* your parents' choice". But this is totally irrelevant given the present state of affairs (i.e the unconscious Downian fetus has grown up to be a conscious human being.)
The remaining question is whether it's morally OK for doctors, governments etc. to direct parents into pro-eugenic opinions. (Someone could say it's all free speech, though.)
Of course, someone could also say that widespread abortion of non-born fetuses with property X can grow widespread general opinion against the living persons with property X, too. That's IMHO the most dangerous thing about eugenics.
P.S. This was written from a quasi-functionalistic perspective, sorry for all soulists.
I honestly cannot tell what I love more - that you expressed so much of what I am thinking, or that you quoted Robert Jordan while doing it...
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